"Suellen's Story," directed by Ilene Sussman, follows the journey of Suellen, a woman with von Hippel-Lindau (VHL) syndrome. This rare genetic disorder can lead to the development of tumors and cysts in various parts of the body, such as the kidneys, pancreas, and brain. The film provides an intimate look at her resilience and determination, shedding light on her experiences living with VHL, her medical challenges, and her family's support. By sharing her personal story, Suellen hopes to raise awareness and understanding of VHL, emphasizing the importance of genetic research and patient advocacy for those impacted by rare diseases.