Life & Atrophy is a poignant documentary that follows the journey of Nikki and Tony McIntosh, parents who are fighting to find experimental treatment for their son, Miles, who has been diagnosed with Spinal Muscular Atrophy (SMA). Directed by Gareth Burghes, the 24-minute film delves into the emotional and physical challenges that come with caring for a child with SMA, a rare neuromuscular disorder that leads to severe muscle deterioration.
The film not only portrays the family’s personal story but also sheds light on the broader medical and ethical questions surrounding SMA treatments, illustrating the lengths to which families will go for a chance at hope and healing. Through candid interviews and intimate moments, Life & Atrophy brings attention to the realities of living with a rare disease, highlighting both the struggles and resilience of families affected by SMA.