2017 | United States | Documentary

Growing up with FSHD

  • English English 25 mins
  • Director | Alexi Pappas
  • Writer | Alexi Pappas
  • Producer | Alexi Pappas

STATUS: Released

This film is currently not available.   

FSHD is a rare form of Muscular Dystrophy, also known as Facioscapulohumeral Dystrophy. This type of MD, most severely affects your face, scapula, and arms, but overtime, the majority of the muscles are affected. In most cases, as you age, your muscles deteriorate. The muscles do not regenerate, therefore causing a lot of pain, weakness and adapting to new ways of life.

Muscular Dystrophy Rare Disease Advocacy Biotechnology Breakthrough Film. Short Film FSHD Health Awarenes Patients Health Research Genetics Facioscapulohumeral Dystrophy
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