Darian just turned 2 in January and is starting to show the signs of the disease. Right now he can still say some words. He can still zip around the park with his walker. For now, he’s hanging on, but just barely. It’s Now or Never for Darian. We are asking you to please help advance treatments for Darian and for all the children and babies suffering from GM1. We need your help for all those who have the incredible misfortune of being born with this truly devastating disease. This ia an URGENT mission and there is no time to lose.